Tuesday, December 2, 2008
Nov. 18th appt.
We saw Dr. Brill at 3:30 that afternoon. He did a thorough history which pleased me, he noticed the tremor in Boo's hands and witnessed her poor co-ordination. He told me that he was going to test her thyroid because that can sometimes explain the tremor. I asked secretly hoping that this could be something else, and said although it's possible don't get your hope's up. I asked if the Neuropathy and Ataxia will persist after a gluten free diet and he smiled and said "probably not, the difference you will see in your child will be incredible. But for now keep the gluten coming at least twice a day so we get a nice good sample" His optimism gave me some hope, I am totally willing to do anything to make her feel like she's normal. When he did his exam he noticed the same masses in her stomach, and said she's really constipated. I said she's been like that since September. He said he didn't want to treat that either until the biopsy, but when I went to book the biopsy to tell his receptionist that we're hoping for a cancellation. Because the appt. had been booked last minute, I was completely overwhelmed. I didn't have my list of questions and my brain felt overloaded. Although the secretary was gone when we left the appointment, I had to return the next day for blood work so I went first thing and got her biopsy booked for December 3rd, 2008, her pre-op appoinment is today December 2nd and the followup appointment is booked for December 19th at 9:15.
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